Did you know that people can get PTSD due to allergic reactions?
Did you know that young kids with allergies often REFUSE to eat new foods for fear of an allergic reaction causing the to become picky eaters and at a risk for malnutrition?
So this post is for all those that have stood in the grocery store and sobbed because you can’t find anything for your family to eat that is safe.
For those that are stressed about money because your grocery bill skyrocketed since allergies were diagnosed.
For those that feel like you never leave the kitchen because you have to make everything from scratch to ensure it is safe for your family.
For those that stay at home instead of going out for dinner at a restaurant, because the thought of eating there or having your kid eat there and react makes you have a panic attack.
For those that stress every time their kid is playing anywhere that isn’t at home, wondering if someone ate something recently that your kid is allergic to…what did they touch? Will you be judged for wiping down everything in the area? What is too much? And then wondering if it might better to just stay home.
For those who decline invites to friends houses because you don’t know how well they clean and you don’t want to offend them by requesting they clean everything first.
For those who want to get frustrated with toddlers who aren’t eating in a high chair and are running/crawling around with their food; everything they are touching is now contaminated and a risk for your child or you. (Trust me I’ve been guilty of this too).
For those who try to act all cool in public but inside you are panicking about everything.
For those that carry an epi pen at all times because you never know when you might need it and the thought of being without causes you to break out in sweats.
For those who panic about trying new foods or starting new trials for ingredients, unsure what the reaction will be.
For those who constantly run through what to do for an anaphylactic response because you are worried you will miss something important.
For those that hear an ambulance and cringe inside, having flashbacks and reliving of previous reactions and the terror it causes.
For those that second guess everything, wondering if something could be related to an allergic reaction or if it’s in your head. Is that a rash, hives, a bug bite or a scrape?
For those that can’t go out in public without wearing an N99 mask because you are airborne reactive to many foods.
For those that are harassed at work or disrespected due to allergies meaning you no longer have a safe work environment.
For those who have to pay an arm and a leg to get medications compounded specially so that they are safe for you to take.
For those that are told that your baby can’t react to food through your breastmilk, to just eat whatever you want but your baby is in pain and screaming, so what else could it be.
To those who religiously check ingredients and stress about what’s in their food.
To those who have misread, or don’t reread a label and have such guilt for feeding their child something that could have killed them.
For those who have nightmares of accidentally killing their child by improperly checking ingredients.
For those that have family that doesn’t respect your boundaries you have put up to protect you or your family and put you at risk, causing you to feel unheard, alone and always in fear.
For those that don’t have a supportive spouse or significant other, to not have someone else looking out for you.
What many may not know or understand is how much allergies can affect ones mental health. I sure didn’t. I thought I understood as I discovered my allergies to gluten and dairy while in highschool and I thought it was the worst imaginable diagnosis.
I didn’t truly understand until my daughter was diagnosed at 3 months of age. I spent so many nights holding a screaming baby and bawling. I would go to the grocery store and sob over my empty shopping cart because my normal staples we couldn’t eat anymore and I had to start from scratch.
Allergies are debilitating. They can cause stress, anxiety, can break relationships, cause self doubt or fear, financial difficulty and everything that goes along with it.
For those on this journey, I am here, we all are. We understand. Find a support group of others with a similar allergy. Share your fears, share your tips or foods that you have discovered. Get medical help if you feel you have anxiety, depression, PTSD or any other mental health issues that are damaging to you, your family or is putting your health at risk. The treatment may look like medication, or it may not, but don’t be scared to get help.
To others, advocate for change, support your loved ones, try to learn about others allergies, what you can do to make it easier for them. Make a change in your office if a coworker is feeling unsafe due to their food allergies. Don’t wear strong perfumes or scents as it is disrespectful to others around you. Put out a teal pumpkin and have non food treats during Halloween. Don’t be offended if someone asks you to not eat something near them or to wash your hands after you eat, and if you do wash your hands, please wash them properly, not just tinkle them under some water.
All this to say that allergies are so incredibly complex and difficult. Let’s build each other up and create supportive environments for everyone.
If I missed anything or have a story to share, please comment. I would love to hear from you.